worriedwendy?? Where are you?!?!?

[jennyleigh1975]

Hey, I have been thinking about you and wondering how things are going. I hope you are coping well with all that is going on. How is your husband?

We'd love to hear from you when you get a chance!!!!

[worriedwendy]

I am so sorry, I have been so busy. My husband did really well his first week of chemo. He was in the hospital all last week and they stayed on top of the nausea. He didn't get sick at all. He only gagged a few times. I brought him home on Friday night. His stomach has been hurting really bad since he has been home, the oncologist doesn't know why except that the chemo affects digestion. All last week though I kept calling him on his cell to see how he was feeling before I went there. On sat. he kept sneezing over and over again and one time he spit up in his hands because he had just taken a tums and gagged as he sneezed. But it wasn't bad. I am more nervous about the next two cycles because I heard the N* can get worse and the anti-n* meds might not work as well. ONe day at a time. My kids have been sick with coughs, fever and their asthma. When they first come down with the fever I panic when they don't have cold symptoms with it, they get sick of me asking if anything else hurts. My husband told me to stop asking how he is feeling every 5 minutes which I agreed to. Now I am just hoping we all stay away from SV's. I will email again soon. Worried Wendy (which by the way was my nickname when I was a kid because of my worry over V*. My mom especially called me that.

[jennyleigh1975]

Wendy, it is so good to get an update from you!!!! Dont be sorry for being away for a while, I figured you would be, I just wanted to let you know that I was thinking about you and your family. Im glad that things are going as well as they are, considering what you guys are going through. Sounds like you handled the first week beautifully!!!! Keep us posted when you can.

You and yours continue to be in my thoughts and prayers!!!!

[tayda]

Glad to hear you're hanging in there... keep it up. I hope all goes well!! We'll all keep you in our prayers!

[bexcelica]

yes im glad to hear your doing good too. good luck girl

[gubba]

Wendy,


I am so out of it right now since my son has been V*ing all day , but I did want to let you know that I am glad all is going well. What an ordeal for all of you, but it sounds like it is working out better than you thought for now.


My thoughts and prayers are with you all. sorry the kids were sick too. My son had that awful cough and fever and V* 2 weeks ago and now he has a fever and V*. I am going crazy here but I was so glad to see that you were o.k. Keep it up!!![img]smileys/smilies_01.gif[/img]

[mommyof3]

It's good to hear from you. I hope things continue to go ok and most importantly that this chemo kicks the cancer's butt!!!!

[ontariogirl]

Glad to hear from you. You are such a strong person. I dont know if I could be as strong as you right now. Your family are in my prayers.

[worriedwendy]

We are in the 2nd cycle of Chemo and he is feeling bad, the last two weeks he has had fever and chills from some the chemo, he has felt N* but no V* yet, knock on wood. He said he felt close last night. Everytime I goto the hospital to visit him, he is staying all week 24 hours a day Mon-Fri. Which is good and bad. I want him home with us but I want him at the hospital being watched over. Believe it or not, I am more nervous in the hospital because if I am in the room with him, there is knowwhere to go and he can't run to the bathroom hooked up to his IV's/ So I take my xanax before I go and try to calm myself down.


My daughter who is 2 kept complaining of her stomach hurting today every couple of hours. Then she complained about it before she fell asleep and I have been pacing and nervous, especially since my husband is not home to deal with it, it is just me and my three kids all week. Knock on wood she is okay. I had a flu shot 3 weeks ago and a couple days later I had a fever, cough, sore throat, the whole nine yards and I was worried that it would turn into a SV. I am always scared at this time of year and I hate that I am an emet, but grateful I am not the only one. As a kid, I was made fun of because of it and my friends tease me about it now. But it is like any other phobia. We all have our ball and chain of something we carry around with us and need to deal with.


Hopefull, we will all stay healthy and my husband has a better night sleep.


Wendy

[pretty polly]

Worriedwendy you are an inspiration to us all!
It it my absolute worst nightmare that my husband (or daughter)
should become seriously ill like your husband is. My hubbie is "my
rock" who protects me from all of this sh*t we put up with, and for
him to become ill would be indescribable!
Well done to you for sticking by him so dutifully and compassionately
- i draw strength from your posts - you are an amazing woman!!!
xxx

[jennyleigh1975]

Wendy, I was thinking about you yesterday and was going to bring this post back up to the top again to ask how you all are doing.

I hope all is well with your daughter.

Just know you and your family are in my thoughts!!!!

[angel13]

You're doing so well, Wendy, and so is your husband, by the sounds of things, despite not feeling his best - at least he is on the road to recovery =)


Stay strong, I'll be thinking of you - best wishes to all of you [img]smileys/smilies_01.gif[/img]Edited by: angel13

[worriedwendy]

Thank you for all your encouragement, my daughter is fine, she has made a few weird looks lately, like I have seen my sons do before they have gotten sick, so I was preparing for it, but so far so good. She has been eating good. We went to the hospital today and visited him, he is doing better today. Smells really turn his stomach, he smells everything and is restless. I wish I could post a picture of us, we took a great one of him and the kids today. My daughter, Savannah, was so adorable to her daddy today, she told him "its not on purpose daddy" whatever that means, but he thought that was so cute. He comes home tomorrow evening and I will be glad to have him home. I just have to be careful what I cook because he can't stand smells. Even good ones like deoderant, lotion, the latex gloves at the hospital, and laundrey detergent. I remember feeling a little of that when I was pregnant but not that bad. His hair is falling out but still looks handsome. We had our 10th anniversary last weekend. We are so blessed to have each other, a strong marriage, and three beautiful, sometimes stubborn, kids. It is times like this that you really look at life and put things in perspective. I can't wait till this is all over and it is put behind us.


Thank you again. Wendy[img]smileys/smilies_01.gif[/img]

[worriedwendy]

Well, we finished round 2 of chemo with no V* yet, knock on wood but he has come close. I had his brother take him to the ER last mon. eve. because he was doubled over in stomach pains. I actually wasn't too worried, I just didn't want to leave the kids in the middle of the night with someone else. He stayed for 3 days and it was just part of the harsh chemo that has been tearing up his stomach with cramping. I have been thinking about this time of year and freaking out everytime I hear one of my three children wake up in the night, which seems like every night. I am sometimes more worried about them getting sick right now than my husband. It all is high anxiety for me right now and I actually haven't read to much of the posts because I don't want to know if there is SV's going around, it just hightens my nerves even more. We have 1 more month of the chemo and with each cycle the nausea gets worse, so I am still nervous and concerned for him. Although I have sat a lot at the hospital and not felt too bad, just wanting him to feel better, he said, imagine drinking Drano, that is how it feels. He can't stand smells, food, getting up for too long, he is pale, weak and fighting. It is very hard but I have a lot of hope and am happy we are more than half way done. The in between weeks of his hell week (the week at the hospital with the 5 day infusion) he gets one chemo drug that gives him the shakes, high fever and body aches, which I also hate seeing him go through. Well I better go and make sure everyone is in bed. I hate the nights, which I have found most of us do, I think it is because all is quiet and we are vulnerable and startled being woken up by it. During the day, there is so much going on to keep me busy, I don't think about it that much.


I hope you all are coping and getting through. I still can't believe there are others out there that struggle with this like me, I know we all thought when we were growing up that knowone had this same phobia, it is amazing that it is the #5 phobia.

[gubba]

We are all thinking about you and I know that fear of the middle of the night thing with the kids. My son tosses a lot at night and I hear that and I become scared and I can't sleep. It is a vicious cycle being and EMET and constantly worried about V* and kids and all the rest.


I hope your holidays go well and that your husband continues to do well. Sounds like he is tolerating this better than most and lets hope it continues to be that way.


God bless you all

[tayda]

aww... I'm so sorry to hear that! WHen you said he said "imagine drinking draino".. I kinda though of how ironic that was b/c draino (the chemical) will kill you yet (chemo)- is nothing more than a bunch of toxins being pumped into your body to save your life.


At least you can look forward to being 2/3 of the way through. I'm sure that it is working! Until then, I'll keep you and your family in my prayers-

[worriedwendy]

Well, we just finished the worst of cycle three of chemo and have 11 more days to go, two of which he will have chemo on but the bad N/V ones are done, he has been in and out of the hospital the whole time with almost every side effect except V*. The anti-Nausua drugs they gave him worked so well and I can encourage anyone nervous about chemo that the drugs they have now for N/V really work well, considering my husband had the most n/v chemo drugs they can give and only exp. some Nausea, hiccups, burps and low blood cell counts. Alot of stomach pain that made me nervous but he did alright. I am so relieved and really felt like I was there for him and felt like a single mom to three kids. I am still worried about any SV's going around and have been real protective of my kids. BUt I just found out that the boy they were playing with today had a friend over two days ago that V* at his house, so then I panicked, picked them up and showered them in Hand Sanitizer! LOL. I hate this feeling so much and hate being a psychotic mom at times.


Anyway, if anyone knows of anyone that is about to go through chemo, the anti-N/V drugs they have now work extremely well. He took Zofran, Kytril, Decadron and Emend. Knock on wood we all stay healthy right now and stay clear of SV's.


Just wanted to update you all. Thank you again for the support.


Wendy

[redapple]

SO proud of you wendy, and you should definitely be proud of yourself.

11 more days!!! woo hoo!

you're a great wife and a great mom.

we'll be praying for your family.

[tayda]

BIG SIGH OF RELIEF over here! You've been handleing things SO WELL.. you're such a trooper! Hang in there. How is your anxiety and so forth? All of this is enough to make any "NORMAL" person on edge.